Yesterday we had Grace’s first clinical follow-up for diabetes. It was a long appointment (around 2 hours), but it went really well. (Other than Caleb kicking the nurse practitioner – but that’s another story…)
Grace’s A1C levels…This number shows how high or low blood glucose levels have been overall for the preceding 2-3 months (like a 3-month average). The day she was diagnosed, her A1C level was 9.4, which is high, but not too bad because we caught it early. (Some kids come in with an A1C of 14 or more!) Her target range is 7.5 to 8.5, and yesterday her A1C was 7.7! Wonderful! Praise the Lord! The nurse practitioner was very pleased with her blood glucose control.
That was the good news. Now, the possible challenges…
We need to do better with rotating her injection sites. She prefers to get shots in her abdomen, and she’s already building up scar tissue there. So, we are to avoid that area for a couple of weeks or more to allow it to heal. And we need to develop a rotation to keep her tissue healthy.
Also, her bloodwork came back showing high levels of transglutaminase antibodies (yep, had to Google it), which CAN indicate that she has Celiac Disease. It’s basically a gluten intolerance that causes damage to the small intestine. It’s commonly linked to Type 1 diabetes, which is why they screened for it. Now we will have more extensive bloodwork done, and if that still indicates possible Celiac Disease, our endocrinologist will refer us to a GI (gastrointestinal) specialist for a biopsy of her small intestine. If that confirms Celiac Disease, we’ll learn how to live an entirely gluten-free life, which means no wheat, rye, or barley products. This will definitely be a big challenge for me!
I also talked to the nurse practitioner about getting Grace on an insulin pump. She said that some insurance companies make you wait six months from the time of diagnosis before paying for a pump, and we need to take their education classes (two of which we’ve already completed). But other than that, we can pursue a pump whenever we feel best. We’re signed up for the Intro to Pumping class at the very end of this month, and we’ll make a decision after that.
Besides bloodwork and the pump class, Grace shouldn’t need to see the doctor again until mid-July, so that’s great!
Unrelated to diabetes, I had my 33-week OB appointment this morning. Things are going well! Last time (at 30 weeks?), the doctor said that Jaden was still head-up, but today he is head-down! That means he’s getting ready! AHHHHH! I’m NOT ready!!! 🙂 The three big kids are all sharing a room successfully, and I’ve pretty much finished what I planned to do for decorating their room. It won’t take much for Jaden’s room to be ready for him either. I guess I just need to do a deep clean of our house, finish organizing the basement, freeze some more food for postpartum, figure out who’s going to take care of the kids during our hospital stay (and train them to give Grace’s shots), pack my hospital bag…Okay, I still have a lot to do! And yet, I know that Jaden will come eventually, whether I’m “ready” or not!